Resource List

We provide this resource page as a courtesy to our members. While all attempts have been made to keep the information provided here accurate and up-to-date, please use your judgment when referring families to resources. NAPSW neither supports nor recommends these organizations. If you notice incorrect information, or have resource suggestions, please contact resources@NAPSW.org. Resources that are non-profit, nationally relevant and in line with the mission of NAPSW will be considered. NAPSW Standards of Practice are shared, but are only able to be printed by active NAPSW members. 


Adolescent Pregnancy

NAPSW Standards for Adolescent Pregnancy


Adoption

NAPSW Standards for Adoption

Adoptive Families

Adoptive Families is an award-winning resource for parents-to-be navigating the adoption process and for parents raising children through adoption.
www.adoptivefamilies.com

Child Welfare Information Giveaway

Child Welfare Information Gateway promotes the safety, permanency, and well-being of children, youth, and families by connecting child welfare, adoption, and related professionals as well as the public to information, resources, and tools covering topics on child welfare, child abuse and neglect, out-of-home care, adoption, and more.
www.childwelfare.gov

National Center for Adoption

The National Centre for Adoption is a 501(c)(3) non-profit organization dedicated to promoting adoption through education, research, publicity, and collaboration.
www.thenationalcenterforadoption.org

National Council for Adoption

Passionately committed to the belief that every child deserves to thrive in a nurturing, permanent family, NCFA’s mission is to meet the diverse needs of children, birth parents, adopted individuals, adoptive families, and all those touched by adoption through global advocacy, education, research, legislative action, and collaboration.
www.adoptioncouncil.org/resources/general

Tapestry Books

Adoption Books and Resources
www.tapestrybooks.com


Bereavement/Grief and Loss

NAPSW Standards for Bereavement

Compassionate Friends

Through a network of almost 700 chapters with locations in all 50 states, as well as Washington DC, Puerto Rico, and Guam, The Compassionate Friends has been providing support to bereaved families after the death of a child for four decades.
www.compassionatefriends.org

Journey of Hearts

An online healing place for anyone grieving a loss.
www.journeyofhearts.org


Breastfeeding

International Breastmilk Project

IBMP is an international humanitarian aid organization, dedicated to providing life-giving donor milk to infants in emergent need.
www.breastmilkproject.org


La Leche League International

Our Mission is to help mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
www.llli.org


Cancer

Pregnant With Cancer

Offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
www.pregnantwithcancer.org


Cerebral Palsy

Cerebral Palsy Guidance

Cerebral Palsy Guidance provides information, guidance and assistance to parents of a child with cerebral palsy.
www.cerebralpalsyguidance.com

Cerebral Palsy Guide

Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
www.cerebralpalsyguide.com

Cerebral Palsy Group

Provides free educational information and support to those who have been affected by cerebral palsy and other developmental disabilities.
www.cerebralpalsygroup.com


Child Abuse/Neglect and Welfare

Child Welfare Information Gateway

Connects child welfare and related professionals to comprehensive information and resources to help protect children and strengthen families.
www.childwelfare.gov

Child Welfare League of America

The oldest child welfare organization in the United States. The CWLA is the trusted authority for professionals who work with children and the only national organization with members from both public and private agencies, providing unique access and influence to all sectors of the children’s services field.
www.cwla.org

Article: Frank Ainsworth & Patricia Hansen (2012)
Doing Harm While Doing Good: The Child Protection Paradox
Child & Youth Services, 33:2, 146-157
DOI:10.1080/0145935X.2012.704787
http://dx.doi.org/10.1080/0145935X.2012.704787


Cord Blood

Cord Blood Banking

Our organization promotes awareness for current and future stem cell treatments, and we are committed to being the most comprehensive and up-to-date resource available for mothers and families considering cord blood.
www.cordbloodbanking.com


Disability

Through the Looking Glass

A nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement.
www.lookingglass.org


Domestic Violence

National Coalition Against Domestic Violence

The National Coalition Against Domestic Violence (NCADV) is the voice of victims and survivors. We are the catalyst for changing society to have zero tolerance for domestic violence. We do this by affecting public policy, increasing understanding of the impact of domestic violence, and providing programs and education that drive that change.
www.ncadv.org

 

National Domestic Violence Hotline

At the National Domestic Violence Hotline, our highly trained expert advocates are available 24/7 to talk confidentially with anyone in the United States who is experiencing domestic violence, seeking resources or information, or questioning unhealthy aspects of their relationship.
1-800-799-SAFE (7233)
www.thehotline.org


Ethics

NAPSW Code of Ethics


Family Centered Care

Institute for Patient- and Family-Centered Care

IPFCC advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, IPFCC seeks to integrate these concepts into all aspects of health care.
www.ipfcc.org

Better Together: Partnering with Families, equips hospital leaders with the rationale, tools, and support needed to change visiting policies. The tools are designed for hospitals that are just beginning to think about changing policies—and for hospitals that have already begun the process but can benefit from additional resources.
www.ipfcc.org/bestpractices/better-together-partnering


Financial Assistance

Caiden’s Hope

At Caiden's Hope we strive to help families with the incurring fees associated with a NICU stay such as: parking, travel, and other expenses.
www.caidenshope.org

singlemothersgrants.org

Directory of grants for single mothers. Listed here are financial assistance programs that help single mothers with rent, utility bills, child care, education, medication, housing, medical bills, and mortgage, among others.
www.singlemothersgrants.org


Group B Strep

Group B Strep Association

The Group B Strep Association (GBSA) is a non-profit organization that was formed in June of 1990 by parents whose babies died from this devastating infection.
www.groupbstrep.org


HIE

Hope for HIE

A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).
www.hopeforhie.org


HIV/AIDS

National Center for HIV/AIDS, Viral Hepatitis, STD, & TB Prevention

Maximizes public health and safety nationally and internationally through the elimination, prevention, and control of disease, disability, and death caused by HIV/AIDS, viral hepatitis, STDs and TB.
www.cdc.gov/nchhstp


Hospice and Palliative Care

A Place to Remember

Uplifting support resources for those who have been touched by a crisis in pregnancy or the death of baby.
www.aplacetoremember.com


Children's Hospice International

In 1983, Children's Hospice International (CHI) was founded as a non-profit organization to provide a network of support and care for children with life-threatening conditions and their families.
www.nhpco.org/link/childrens-hospice-international


Infertility

NAPSW Standards for Infertility

Resolve: The National Infertility Association

A non-profit, charitable organization, who works to improve the lives of women and men living with infertility
www.resolve.org


Legal

Family Law

Provides resources and state-by-state information for family law questions
family.findlaw.com

National Advocates for Pregnant Women

National Advocates for Pregnant Women (NAPW) is a non-profit organization that works to secure the human and civil rights, health and welfare of all people, focusing particularly on pregnant and parenting women, and those who are most likely to be targeted for state control and punishment - low income women, women of color, and drug-using women.
www.advocatesforpregnantwomen.org


LGBTQ

The World Professional Association for Transgender Health

A non-profit, interdisciplinary professional and educational organization devoted to transgender health.
www.wpath.org

TransActive Gender Center

TransActive Gender Center provides a holistic range of services and expertise to empower transgender and gender diverse children, youth and their families in living healthy lives, free of discrimination.
www.transactiveonline.org

Trans Birth

Trans Birth is a directory created to connect trans* and gender non-conforming people and their families to midwives, OBGYNs, and doulas who provide welcoming care to our communities.
www.transbirth.org

ICATH:Informed Consent for Access toTrans Health

ICATH promotes the use of informed consent as a recognized standard of care to support the ultimate well-being and autonomy for people who are transgender, intersex, and gender non-conforming.
www.icath.org


Maternal Mental Health

NAPSW Standards for PostPartum Depression

Massachusetts General Hospital Center for Women’s Mental Health

This website provides a range of current information including discussion of new research findings in women’s mental health and how such investigations inform day-to-day clinical practice.
www.womensmentalhealth.org

Postpartum Support International

Dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth.
www.postpartum.net

Seleni Institute

The Seleni Institute is a nonprofit organization that was founded by Nitzia and George Logothetis in 2011 to destigmatize and transform mental health and wellness by addressing real-life issues that challenge the emotional health of women, men, and their families.
www.seleni.org


Multiples


Multiples of America (aka the National Organization of Mother of Twins Clubs)

Connecting and Supporting Multiple Birth Families
www.multiplesofamerica.org


Mothers of Multiples (aka MOMS):

Search for local chapters as many exist


 

Neonatal Abstinence Syndrome (NAS)

Neonatal Abstinence Syndrome-Family Education Video-University of Maryland Medical Center

This video provides an overview of Neonatal Abstinence Syndrome (NAS), which can result from opioid use during pregnancy. Sharing one mom’s experience of having an infant with NAS, this video offers mothers and providers an overview of the symptoms and treatment of NAS, including caring and comforting techniques for a baby experiencing withdrawal symptoms. This video was written and produced by the University Of Maryland Medical Center Department Of Psychiatry; Department of Obstetrics, Gynecology, and Reproductive Health Services; and the Department of Social Work.
www.cffutures.org/resources/neonatal-abstinence-syndrome-video


 

NICU Information

NAPSW Standards for NICU

NICU Now

Hand to Hold’s audio support series for parents who are in the NICU. Free podcast available to support families without leaving their baby’s bedside.
www.handtohold.org/support/nicu-support/nicu-now-podcast

Your NICU Baby

Your NICU Baby is a subscription-based, on-demand educational video library that parents can watch in the NICU and online at home.
www.yournicubaby.com


NICU Parent Support

Graham's Foundation

Graham’s Foundation delivers support, advocacy and research to improve outcomes for preemies and their families.
www.grahamsfoundation.org

Hand to Hold

A nonprofit organization which carefully matches seasoned parents of preemies (Helping Hands) with parents in need of support.
www.handtohold.org

March of Dimes: Share Your Story

A community to share your story with prematurity, birth defects or loss
www.share.marchofdimes.org

NICU Helping Hands

NICU Helping Hands developed their five key programs to meet the needs of families throughout their journey. These programs include Project NICU, One-on-One Mentoring Program, Family Assistance Program, NICU Mom Connect, Angel Gown® Program.
www.nicuhelpinghands.org

Preemie Parent Alliance

Preemie Parent Alliance is a network of organizations offering support to families of premature infants. To ensure best outcomes for preemie families, the Preemie Parent Alliance is dedicated to representing the needs and best interests of preemie families in all facets of healthcare policy, care guidelines, advocacy, education and family support.
www.preemieparentalliance.org

Zoe Rose Memorial Foundation

Provides emotional support, educational resources, and awareness focused events, which inspire hope in parents of preemies while in the NICU, post discharge and for those who have suffered a pregnancy or infant loss.
www.zoerose.org


NICU Apps

MyPreemie app By Graham's Foundation
NICU Words
Peek A Boo ICU Preemie App
Quantum Caring for Parents (QCP) - NICU


Obstetrics

NAPSW Standards for Obstetrics


Pregnancy and Pregnancy Termination

A Heartbreaking Choice

Supports women who have made the “Heartbreaking Choice” to terminate a much wanted pregnancy. For those who have undergone a pregnancy termination due to a poor prenatal diagnosis, problems with their own health, or for the health of another fetus (selective reduction).
www.aheartbreakingchoice.com

 
Planned Parenthood

Planned Parenthood is one of the nation’s leading providers of high-quality, affordable health care, and the nation’s largest provider of sex education.
www.plannedparenthood.org

National Advocates for Pregnant Women

 
Works to secure the human and civil rights, health and welfare of all women, focusing particularly on pregnant and parenting women, and those who are most vulnerable to state control and punishment – low income women, women of color, and drug-using women.
 www.advocatesforpregnantwomen.org


 

Prematurity

March of Dimes

Helps moms have full-term pregnancies and researches the problems that threaten the health of babies.
www.marchofdimes.com


Premature Baby

Support preemie parents by providing information on prematurity and preemie care.
www.prematurity.org


Perinatal Professional Association


National Perinatal Association Professionals

 
NPA gives voice to the needs of pregnant women, infants, their families and their healthcare providers by bringing together stakeholders that collectively can have the greatest positive impact on perinatal care in the United States.
www.nationalperinatal.org


Safe Sleep

American Academy of Pediatrics Safe Sleep Recommendations
www.aap.org/en-us/about-the-aap/Committees-Councils-Sections/Child-Death-Review/Pages/Safe-Sleep.aspx
 

Baby Box University

An educational service provided by The Baby Box Co. in coordination with committed medical professionals, maternal health advocates and child development specialists for the purposes of reducing infant mortality and empowering parents
www.babyboxuniversity.com


Social Security Administration/SSI

This booklet is for the parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments.
www.ssa.gov/pubs/EN-05-10026.pdf


 

Social Work

NAPSW Field Education Standards


National Association of Social Workers

NASW works to enhance the professional growth and development of its members, to create and maintain professional standards, and to advance sound social policies.
www.socialworkers.org
 

Society for Social Work Leadership in Health Care Support

Dedicated to promoting the universal availability, accessibility, coordination, and effectiveness of health care that addresses the psychosocial components of health and illness.
www.sswlhc.org
 

Social Work Guide

Free resource for students looking to enter or advance in the social work field
www.socialworkguide.org/licensure/

Social Work Degrees

A comprehensive resource for exploring colleges and universities offering a degree in Social Work. All degree levels are covered.
www.socialworkdegrees.org

 

The Social Work Podcast

Provides information on all things social work, including direct practice (both clinical and community organizing), research, policy, education… and everything in between.
socialworkpodcast.blogspot.com


University of Buffalo Social Work Podcast

inSocialWork® is the podcast series of the University at Buffalo School of Social Work. The purpose of this series is to engage practitioners and researchers in lifelong learning and to promote research to practice and practice to research. inSocialWork® features conversations with prominent social work professionals, interviews with cutting-edge researchers, and information on emerging trends and best practices in the field of social work
www.insocialwork.org


MSW Guide

Your source for information on Master’s in Social Work programs, social work licensure, career paths as a social worker, and more.
www.mswguide.org


Spina Bifida

Spina Bifida Association

Serves adults and children who live with the challenges of Spina Bifida by providing education, advocacy, research, and service.
www.sbaa.org


Substance Use

Alcoholics Anonymous

Alcoholics Anonymous is an international mutual aid fellowship founded in 1935 by Bill Wilson and Dr. Bob Smith in Akron, Ohio. AA's stated "primary purpose" is to help alcoholics "stay sober and help other alcoholics achieve sobriety".
www.aa.org

Narcotics Anonymous

Narcotics Anonymous is a global, community-based organization with a multilingual and multicultural membership. NA was founded in 1953, and members hold nearly 67,000 meetings weekly in 139 countries today.
www.na.org


National Organization on Fetal Alcohol Syndrome

NOFAS prevents alcohol use during pregnancy and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs).
www.nofas.org


Surrogacy

NAPSW Standards for Surrogacy


Resolve: The National Infertility Association

US infertility association site providing information for patients, professionals and media.
www.resolve.org/family-building-options/surrogacy


Trisomy

National Down Syndrome Society

The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
www.ndss.org 
 

Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)

SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
www.trisomy.org


Zika Virus

Zika Care Connect (ZCC)

The Centers for Disease Control and Prevention (CDC), in collaboration with the March of Dimes, is working to establish a specialty provider network, known as Zika Care Connect (ZCC), to provide this service
www.zikacareconnect.org