Resources List
We provide this resource page as a courtesy to our members. While all attempts have been made to keep the information provided here accurate and up-to-date, please use your judgment when referring families to resources. NAPSW neither supports nor recommends these organizations. If you notice incorrect information, or have resource suggestions, please contact resources@NAPSW.org. Resources that are non-profit, nationally relevant and in line with the mission of NAPSW will be considered. NAPSW Standards of Practice are shared, but are only able to be printed by active NAPSW members.
Adolescent Pregnancy
NAPSW Standards for Adolescent Pregnancy
Adoption
NAPSW Standards for Adoption
Adoptive Families
Adoptive Families is an award-winning resource for parents-to-be navigating the adoption process and for parents raising children through adoption.
www.adoptivefamilies.com
Child Welfare Information Giveaway
Child Welfare Information Gateway promotes the safety, permanency, and well-being of children, youth, and families by connecting child welfare, adoption, and related professionals as well as the public to information, resources, and tools covering topics on child welfare, child abuse and neglect, out-of-home care, adoption, and more.
www.childwelfare.gov
National Council for Adoption
Passionately committed to the belief that every child deserves to thrive in a nurturing, permanent family, NCFA’s mission is to meet the diverse needs of children, birth parents, adopted individuals, adoptive families, and all those touched by adoption through global advocacy, education, research, legislative action, and collaboration.
www.adoptioncouncil.org
Tapestry Books
Adoption Books and Resources
www.tapestrybooks.com
Ambiguous Genitalia
InterACT
interACT uses innovative legal and other strategies, to advocate for the human rights of children born with intersex traits.
https://interactadvocates.org
Katharine Dalke, MD, MBE
Assistant Professor at Penn State recommended by NAPSW member as expert in this area. Her webpage has relevant articles and resources.
Anti-Racism
Black Lives Matter
A global organization in the US, UK, and Canada, whose mission is to eradicate white supremacy and build local power to intervene in violence inflicted on Black communities by the state and vigilantes.
www.blacklivesmatter.com
Boston University Center for Antiracist Research
The mission of the Boston University Center for Antiracist Research is to convene researchers and practitioners from various disciplines to figure out novel and practical ways to understand, explain, and solve seemingly intractable problems of racial inequity and injustice.
www.bu.edu/antiracism-center
Recommended Reading
How to Be an Antiracist by Ibram X. Kendi
White Fragility: Why It's So Hard for White People to Talk About Racism by Robin DiAngelo
Between the World and Me by Ta-Nehisi Coates
The New Jim Crow: Mass Incarceration in the Age of Colorblindness by Michelle Alexander
Bereavement/Grief and Loss
NAPSW Standards for Bereavement
Compassionate Friends
Through a network of almost 700 chapters with locations in all 50 states, as well as Washington DC, Puerto Rico, and Guam, The Compassionate Friends has been providing support to bereaved families after the death of a child for four decades.
www.compassionatefriends.org
Cuddle Cot
A cuddle cot is a cooling pad which can be inserted into any type of baby bed – from Moses baskets to carry-cots, prams to cots – to allow the families of babies who have passed away time to grieve. Further information is available via a browser search on the internet.
Ending A Wanted Pregnancy
Abortion grief support for parents dealing with a termination for medical reasons.
https://endingawantedpregnancy.com
Journey of Hearts
An online healing place for anyone grieving a loss.
www.journeyofhearts.org
Postpartum Support International (PSI)
Various resources available on this site related to perinatal loss.
www.postpartum.net
Return to Hope
Provides compassionate and holistic support to people who have experienced loss on their journey to pregnancy.
rtzhope.org
Star Legacy Foundation
To increase awareness, support research, promote education, and encourage advocacy and family support regarding stillbirth, pregnancy loss, and neonatal death.
www.starlegacyfoundation.org
Breastfeeding
La Leche League International
Our Mission is to help mothers worldwide to breastfeed through mother-to-mother support, encouragement, information, and education, and to promote a better understanding of breastfeeding as an important element in the healthy development of the baby and mother.
www.llli.org
Cancer
Hope for Two: The Pregnant With Cancer Network
Offers free support for women diagnosed with cancer while pregnant. We connect women who are currently pregnant with cancer with other women who have experienced a similar cancer diagnosis.
www.hopefortwo.org
Cerebral Palsy
Cerebral Palsy Guidance
Cerebral Palsy Guidance provides information, guidance and assistance to parents of a child with cerebral palsy.
www.cerebralpalsyguidance.com
Cerebral Palsy Guide
Cerebral Palsy Guide provides free educational materials, financial options and support to help those across the country affected by this disorder.
www.cerebralpalsyguide.com
Cerebral Palsy Group
Provides free educational information and support to those who have been affected by cerebral palsy and other developmental disabilities.
www.cerebralpalsygroup.com
Child Abuse/Neglect and Welfare
Child Welfare Information Gateway
Connects child welfare and related professionals to comprehensive information and resources to help protect children and strengthen families.
www.childwelfare.gov
Child Welfare League of America
The oldest child welfare organization in the United States. The CWLA is the trusted authority for professionals who work with children and the only national organization with members from both public and private agencies, providing unique access and influence to all sectors of the children’s services field.
www.cwla.org
Article: Frank Ainsworth & Patricia Hansen (2012)
Doing Harm While Doing Good: The Child Protection Paradox
Child & Youth Services, 33:2, 146-157
DOI:10.1080/0145935X.2012.704787
http://dx.doi.org/10.1080/0145935X.2012.704787
CMV
National CMV Foundation
When we incorporated in 2014, we set out to raise awareness and educate women of childbearing age about congential cytomegalovirus (CMV). We are the largest national advocacy organization focused on congenital CMV and public health.
www.nationalcmv.org
Congenital Diaphragmatic Hernia
Cherubs
The Association of Congenital Diaphragmatic Hernia research, awareness and support
https://cdhboards.org
Cord Blood
Cord Blood Banking
Our organization promotes awareness for current and future stem cell treatments, and we are committed to being the most comprehensive and up-to-date resource available for mothers and families considering cord blood.
www.cordbloodbanking.com
COVID-19
American Psychological Association
Self-Care for Healthcare Professionals: https://www.apaservices.org/practice/ce/self-care/health-providers-covid-19
March of Dimes Update
https://www.marchofdimes.org/complications/coronavirus-disease-covid-19-what-you-need-to-know.aspx
National Association of Social Workers
Ethics During Pandemic: http://www.socialworkblog.org/practice-and-professional-development/2020/04/social-work-ethics-during-the-time-of-pandemic/
Implications for Vulnerable and Marginalized Populations: https://www.socialworkers.org/LinkClick.aspx?fileticket=U7tEKlRldOU%3d&portalid=0
Hospital Social Work During Pandemic: https://www.socialworkers.org/News/Social-Work-Talks-Podcast/EP50-Hospital-Social-Work-During-the-Coronavirus-Pandemic
Telehealth: https://www.socialworkers.org/Practice/Infectious-Diseases/Coronavirus/Telehealth
United Way COVID Response
United Way Worldwide's COVID-19 Community Response and Recovery Fund supports communities by helping local United Ways respond, and by ensuring people get accurate information. 211, the information resource is fielding calls mostly for food, financial assistance and housing.
https://www.unitedway.org/recovery/covid19#
Disability
Through the Looking Glass
A nationally recognized center that has pioneered research, training, and services for families in which a child, parent or grandparent has a disability or medical issue. TLG is a disability community based nonprofit organization, which emerged from the independent living movement.
www.lookingglass.org
Domestic Violence
National Coalition Against Domestic Violence
The National Coalition Against Domestic Violence (NCADV) is the voice of victims and survivors. We are the catalyst for changing society to have zero tolerance for domestic violence. We do this by affecting public policy, increasing understanding of the impact of domestic violence, and providing programs and education that drive that change.
www.ncadv.org
National Domestic Violence Hotline
At the National Domestic Violence Hotline, our highly trained expert advocates are available 24/7 to talk confidentially with anyone in the United States who is experiencing domestic violence, seeking resources or information, or questioning unhealthy aspects of their relationship.
1-800-799-SAFE (7233)
www.thehotline.org
Ethics
Schwartz Center for Compassionate Healthcare
Through innovative programs, education and advocacy, the Schwartz Center is working to support caregivers, healthcare leaders and others and bring compassion to every healthcare experience.
https://www.theschwartzcenter.org
Family Centered Care
Institute for Patient- and Family-Centered Care
IPFCC advances the understanding and practice of patient- and family-centered care. In partnership with patients, families, and health care professionals, IPFCC seeks to integrate these concepts into all aspects of health care. Better Together: Partnering with Families, equips hospital leaders with the rationale, tools, and support needed to change visiting policies.
www.ipfcc.org
Financial Assistance
Caiden’s Hope
At Caiden's Hope we strive to help families with the incurring fees associated with a NICU stay such as: parking, travel, and other expenses.
www.caidenshope.org
Colette Louise Tisdahl Foundation
This organization is striving to improve the outcomes of pregnancy, childbirth, infant health, and loss through financial assistance to families who are struggling with pregnancy complications and premature birth.
www.colettelouise.com
Gastroschisis
Avery's Angels Gastroschisis Foundation
Created to support gastroschisis research, awareness and support for patients and families affected by gastroschisis.
https://averysangels.org
Group B Strep
Group B Strep Association
The Group B Strep Association (GBSA) is a non-profit organization that was formed in June of 1990 by parents whose babies died from this devastating infection.
www.groupbstrep.org
HIE
Hope for HIE
A resource for families whose children have been diagnosed with hypoxic ischemic encephalopathy (HIE).
www.hopeforhie.org
HIV/AIDS
National Center for HIV/AIDS, Viral Hepatitis, STD, & TB Prevention
Maximizes public health and safety nationally and internationally through the elimination, prevention, and control of disease, disability, and death caused by HIV/AIDS, viral hepatitis, STDs and TB.
www.cdc.gov/nchhstp
Hospice and Palliative Care
Hospice Foundation of America
HFA is a trusted source of information on end of life, hospice care and grief. Throughout this site you will find information about living with advanced life-limiting illness, options for care and helpful resources for caregivers.
https://hospicefoundation.org
National Hospice and Palliative Care Organization
As the leading organization representing hospice and palliative care providers, NHPCO works to expand access to a proven person-centered model for healthcare—one that provides patients and their loved ones with comfort, peace, and dignity during life’s most intimate and vulnerable experiences.
https://www.nhpco.org
Hydrocephalus
The Hydrocephalus Association
The mission of the Hydrocephalus Association is to promote a cure for hydrocephalus and improve the lives of those affected by the condition. They provide information as well as a support network to families impacted by hydrocephalus.
Infertility
NAPSW Standards for Infertility
Resolve: The National Infertility Association
A non-profit, charitable organization, who works to improve the lives of women and men living with infertility
www.resolve.org
IVF Authority
IVF Authority specializes in IVF data analysis and mining. It provides In Vitro Fertilization(IVF) one stop resources and assisted reproductive technology education. The most comprehensive IVF web portal provides the quality tools and information.
www.ivfauthority.com
Your Fertility Friend
We help prospective patients understand what their options may be for in vitro fertilization. Browse our site resources, FAQ’s, and online tools to start your education on IVF.
www.yourfertilityfriend.com
Legal
Family Law
Provides resources and state-by-state information for family law questions
www.findlaw.com
Legal Service Corporation
Legal Services Corporation (LSC) is an independent nonprofit established by Congress in 1974 to provide financial support for civil legal aid to low-income Americans. LSC promotes equal access to justice by providing funding to 132 independent non-profit legal aid programs in every state, the District of Columbia, and U.S. Territories. LSC grantees serve thousands of low-income individuals, children, families, seniors, and veteransLegal Services Corporation
https://www.lsc.gov
National Advocates for Pregnant Women
National Advocates for Pregnant Women (NAPW) is a non-profit organization that works to secure the human and civil rights, health and welfare of all people, focusing particularly on pregnant and parenting women, and those who are most likely to be targeted for state control and punishment - low income women, women of color, and drug-using women.
www.advocatesforpregnantwomen.org
LGBTQAI
The World Professional Association for Transgender Health
A non-profit, interdisciplinary professional and educational organization devoted to transgender health.
www.wpath.org
Maternal Mental Health
NAPSW Standards for PostPartum Depression
Edinburgh Postnatal Depression Scale
The Edinburgh Postnatal Depression Scale is a 10-item questionnaire that was developed to identify women who have postpartum depression. It is available in multiple languages.
https://med.stanford.edu/content/dam/sm/ppc/documents/DBP/EDPS_text_added.pdf (English/Spanish)
https://www.dchealthcheck.net/documents/10-2015-EPDS-Translations.pdf (multiple languages)
Massachusetts General Hospital Center for Women’s Mental Health
This website provides a range of current information including discussion of new research findings in women’s mental health and how such investigations inform day-to-day clinical practice.
www.womensmentalhealth.org
Maternal Mental Health Leadership Alliance
Maternal Mental Health Leadership Alliance (MMHLA) is a nonpartisan 501(c)3 nonprofit organization dedicated to promoting
the mental health of mothers and childbearing people in the United States with a focus on national policy and health equity.
MMHLA advocates for improved maternal mental health care and serves as a clearinghouse of information related to maternal mental health.
www.mmhla.org
PostpartumDepression.org
Information, support and treatment options for families struggling with postpartum depression.
www.postpartumdepression.org
Postpartum Support International
Dedicated to helping women suffering from perinatal mood and anxiety disorders, including postpartum depression, the most common complication of childbirth.
www.postpartum.net
Seleni Institute
The Seleni Institute is a nonprofit organization that was founded by Nitzia and George Logothetis in 2011 to destigmatize and transform mental health and wellness by addressing real-life issues that challenge the emotional health of women, men, and their families.
www.seleni.org
Mindfulness
Meditations for Pregnant and NICU Parents
Free, 15 minute meditations created especially for pregnant women and NICU families during this time
www.sagenestyoga.buzzsprout.com
Multiples
Multiples of America (aka the National Organization of Mother of Twins Clubs)
Connecting and Supporting Multiple Birth Families
www.multiplesofamerica.org
Mothers of Multiples (aka MOMS):
Search for local chapters as many exist
Necrotizing Enterocolitis (NEC)
NEC Society
The NEC Society is the world’s first and only activist-based, clinician/family collaborative organization specifically focused on the understanding, prevention and treatment of NEC. The NEC Society was launched in 2014 and is spearheaded by two mothers who lost their own babies to NEC.
www.necsociety.org
Neonatal Abstinence Syndrome (NAS)
NAS is a group of conditions caused when a baby withdraws from certain drugs (most often opioids) he’s exposed to in the womb before birth.
www.marchofdimes.org/complications/neonatal-abstinence-syndrome-(nas).aspx
NICU Information
NAPSW Standards for NICU
My NICU Network
Online continuing education developed by parents and providers
http://www.myperinatalnetwork.org/my-nicu-network-demo.html
NICU Now
Hand to Hold’s audio support series for parents who are in the NICU. Free podcast available to support families without leaving their baby’s bedside.
www.handtohold.org/support/nicu-support/nicu-now-podcast
Your NICU Baby
Your NICU Baby is a subscription-based, on-demand educational video library that parents can watch in the NICU and online at home.
www.yournicubaby.com
NICU Parent Support
Graham's Foundation
Graham’s Foundation delivers support, advocacy and research to improve outcomes for preemies and their families.
www.grahamsfoundation.org
Hand to Hold
Hand to Hold helps families before, during, and after a NICU stay and infant loss by providing powerful resources for the whole family, and most importantly, one-on-one mentoring from someone who has been there.
www.handtohold.org
March of Dimes: Share Your Story
A community to share your story with prematurity, birth defects or loss
https://share.marchofdimes.org
NICU Helping Hands
NICU Helping Hands developed their five key programs to meet the needs of families throughout their journey. These programs include Project NICU, One-on-One Mentoring Program, Family Assistance Program, NICU Mom Connect, Angel Gown® Program.
www.nicuhelpinghands.org
Support 4 NICU Parents
Developed by the National Perinatal Association as a resource for parents and professionals. It is a resource for comprehensive NICU family support.
www.support4nicuparents.org
NICU Apps
MyPreemie (Graham's Foundation)
PeekaBooICU
My NICU Baby (March of Dimes)
Obstetrics
NAPSW Standards for Obstetrics
My Perinatal Network
Online continuing education developed by parents and providers
http://www.myperinatalnetwork.org/my-perinatal-network.html
Preeclampsia
Preeclampsia Foundation
Our Purpose is to improve the outcomes of hypertensive disorders of pregnancy by educating, supporting and engaging the community, improving healthcare practices, and finding a cure.
https://www.preeclampsia.org
Pregnancy and Pregnancy Termination
Planned Parenthood
Planned Parenthood is one of the nation’s leading providers of high-quality, affordable health care, and the nation’s largest provider of sex education.
www.plannedparenthood.org
National Advocates for Pregnant Women
Works to secure the human and civil rights, health and welfare of all women, focusing particularly on pregnant and parenting women, and those who are most vulnerable to state control and punishment – low income women, women of color, and drug-using women.
www.advocatesforpregnantwomen.org
Prematurity
March of Dimes
Helps moms have full-term pregnancies and researches the problems that threaten the health of babies.
www.marchofdimes.com
Premature Baby
Support preemie parents by providing information on prematurity and preemie care.
www.prematurity.org
Perinatal Professional Association
AWHONN: Association of Women's Health, Obstetric and Neonatal Nursing
AWHONN's mission is to empower and support nurses caring for women, newborns, and their families through research, education, and advocacy.
https://awhonn.org
National Association of Neonatal Nurses
NANN is the organization of Neonatal Nurses that provides education (journal and conference) as well as advocacy and networking opportunities for nurses working in Neonatal profession
http://nann.org
National Perinatal Association Professionals
NPA gives voice to the needs of pregnant women, infants, their families and their healthcare providers by bringing together stakeholders that collectively can have the greatest positive impact on perinatal care in the United States.
www.nationalperinatal.org
Safe Sleep
American Academy of Pediatrics Safe Sleep Recommendations
https://www.aap.org/en-us/advocacy-and-policy/aap-health-initiatives/safe-sleep/Pages/Safe-Sleep-Recommendations.aspx
Social Security Administration/SSI
This booklet is for the parents, caregivers, or representatives of children younger than age 18 who have disabilities that might make them eligible for Supplemental Security Income (SSI) payments.
www.ssa.gov/pubs/EN-05-10026.pdf
Social Work
NAPSW Field Education Standards
National Association of Social Workers
NASW works to enhance the professional growth and development of its members, to create and maintain professional standards, and to advance sound social policies.
www.socialworkers.org
NASW Social Work Talks Podcast
NASW Social Work Talks podcast gives us an opportunity to explore topics that social workers care about and to hear from social work experts and practitioners.
https://www.socialworkers.org/news/nasw-social-work-talks-podcast
Society for Social Work Leadership in Health Care Support
Dedicated to promoting the universal availability, accessibility, coordination, and effectiveness of health care that addresses the psychosocial components of health and illness.
www.sswlhc.org
The Social Work Podcast
Provides information on all things social work, including direct practice (both clinical and community organizing), research, policy, education and everything in between.
https://socialworkpodcast.blogspot.com
University of Buffalo Social Work Podcast
inSocialWork® is the podcast series of the University at Buffalo School of Social Work. The purpose of this series is to engage practitioners and researchers in lifelong learning and to promote research to practice and practice to research. inSocialWork® features conversations with prominent social work professionals, interviews with cutting-edge researchers, and information on emerging trends and best practices in the field of social work
www.insocialwork.org
Spina Bifida
Spina Bifida Association
Serves adults and children who live with the challenges of Spina Bifida by providing education, advocacy, research, and service.
www.spinabifidaassociation.org
Substance Use
Alcoholics Anonymous
Alcoholics Anonymous is an international mutual aid fellowship founded in 1935 by Bill Wilson and Dr. Bob Smith in Akron, Ohio. AA's stated "primary purpose" is to help alcoholics "stay sober and help other alcoholics achieve sobriety".
www.aa.org
Moderation Management
Moderation Management (MM) is a behavioral change program and national support group network for people concerned about their drinking and who desire to make positive lifestyle changes. MM empowers individuals to accept personal responsibility for choosing and maintaining their own path, whether moderation or abstinence.
www.moderation.org
Narcotics Anonymous
Narcotics Anonymous is a global, community-based organization with a multilingual and multicultural membership. NA was founded in 1953, and members hold nearly 67,000 meetings weekly in 139 countries today.
www.na.org
Fetal Alcohol Spectrum Disorders United (formerly National Organization on Fetal Alcohol Syndrome)
FASD United prevents alcohol use during pregnancy and supports individuals, families, and communities living with Fetal Alcohol Spectrum Disorders (FASDs).
www.fasdunited.org
Surrogacy
Resolve: The National Infertility Association
US infertility association site providing information for patients, professionals and media.
www.resolve.org/family-building-options/surrogacy
Trauma Informed Care
Caring Essentials Trauma Informed Practice Certification Program (NAPSW Members receive a discount!)
Caring Essentials Trauma Informed Care Programs & Certifications
Trisomy 21
National Down Syndrome Society
The mission of the National Down Syndrome Society is to be the national advocate for the value, acceptance and inclusion of people with Down syndrome.
www.ndss.org
Support Organization for Trisomy 18, 13 and Related Disorders (SOFT)
SOFT is a network of families and professionals dedicated to providing support and understanding to families involved in the issues and decisions surrounding the diagnosis and care in Trisomy 18, 13 and other related chromosomal disorders.
www.trisomy.org
Trisomy 18 Foundation
Trisomy 18 Foundation helps parents create new dreams for their child and for their families. Hope is at the heart of the Trisomy 18 Foundation.
https://www.trisomy18.org
Women's Health
Pelvic Rehab
Pelvicrehab.com is a directory for patients searching for pelvic rehabilitation practitioners.